January 2018 – Wednesday 10th
Eaglestone Function Room 11.30 – 2.00
Please support MK’s Esther Hutson for London Marathon!
Let’s hear it for Esther Hutson, daughter of MKCPP member and throat cancer survivor Trevor Hutson and his wife/carer Sally. Esther is running the London Marathon this year to raise money for laryngectomy patients nationwide. Trevor is also a member of Head & Neck Cancer – MK and of Milton Keynes’ new group for head and neck cancer patients, The Swallows.
Trevor explains the background
“I know this is not really 100% relevant but we have a really great and long standing charity for lary’s called NALC – National Association of Laryngectomy Clubs. They are an organisation that provide information for larys and their carers. They help support Clubs and groups. They provide lots of free important accessories such as emergency wristbands, emergency cards, contacts , dvds, car window stickers etc.
Please go to their website to have a look (as they do ship worldwide) http://www.laryngectomy.org.uk/ and they are always pleased to help us all.
Our daughter Esther, on hearing their desperate plight for funding decided to run the London Marathon on behalf of all us larys who are unable to endure a twenty six mile run! We are hoping it will increase awareness of neck breathers and their plight. [Read more…]
Cancer patient engagement event, MKUH December 2017- the results
Recently the Thames Valley Cancer Alliance has been conducting cancer patient engagement events around the region. Here is the summary of our event held in December 2017…
Summary Report Patient Engagement Event, Milton Keynes University Hospital
The Thames Valley Cancer Alliance (TVCA) has funded a series of engagement events taking place across Thames Valley. The purpose of these events has been two-fold: to discuss the latest cancer patient experience survey results to consider how improvements can be made to cancer services, and secondly to introduce individuals to the Thames Valley Cancer Alliance which was established in February 2017.
The National Cancer Patient Experience Survey (CPES) is a questionnaire distributed to patients who have received cancer treatments including surgical, medical and clinical treatments. The survey aims to provide an insight into the care experienced by cancer patients across England and allows Trusts and Clinical Commissioning Groups to understand their individual performance and identify areas for local improvement. A full summary of results is publicly available online via http://www.ncpes.co.uk/index.php/reports/2016-reports/national-reports-1 where results for individual hospitals and clinical commissioning groups can also be accessed.
The event in MK: Michael Mawhinney opened the event with introductions to what the TVCA is and to provide an overview of the CPES and results for Milton Keynes University Hospital (MKUH). Across 3 tables, 3 questions were asked of attendee’s. A summary of the response to each question will be found in this report. During discussions, Lead Cancer Nurse Sally Burnie provided an update for attendee’s about the current status of the new cancer centre build and plans for radiotherapy services. Suzan St Maur then provided an overview of the role of the Milton Keynes Cancer Patient Partnership (MKCPP) and facilitated a discussion with the audience regarding some of the current challenges faced within the cancer care arena, including the roles of Macmillan, the TVCA and MKUH. [Read more…]
Latest news from the Milton Keynes Cancer Patient Partnertship
Latest from our Tracker document
Keeping everyone informed on the projects going through the MKCPP at any one time. This is us updated as at February 10th, 2018.
Closing the gap between hospital and community care for patients living with Cancer and Beyond
Increasingly this is becoming a critical issue, especially given that cancer patients being discharged back into the community to continue living with and beyond cancer often have to jump over a large gap between secondary and primary care. We in the MKCPP have been flagging up this problem for nearly five years now. It is gratifying to see that many other localities, NHS and other groups as well as charities (including Macmillan), are arriving at the same conclusion.
In 2016, Angela Sheldrick, Breast ANP at MKUH was seconded by Macmillan and NHS England to manage Macmillan’s generic Living With & Beyond Cancer project in our locality to move more treatment, and especially post-treatment care, onto a more workable basis in closer partnership with primary care. This move was welcomed by us all in the MKCPP (… especially as we had been asking about it for four years.)
The solution: Cancer and Beyond – your way ahead
New Head and Neck cancer support group launches in MK Feb 14th 2018
“The Swallows” – the nationwide Head and Neck Cancer Support Charity – is opening its Milton Keynes branch on Valentine’s Day, February 14th 2018, at the Mercure Hotel at Abbey Hill, north-west MK.
Known as ‘The Swallows Head & Neck Cancer Support Group’ because of difficulty a lot of people have with swallowing, this group is designed to help provide information for both patients and their carers. It was formed by like-minded cancer patients to help and support fellow sufferers and their carers. [Read more…]
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