It’s a New Year for Cancer patients, carers and families in Milton Keynes … and here are our latest reports and information on what we’re doing to help in this amazing city of ours. If you have any comments, questions, requests or other enquiries, just send them along now to firstname.lastname@example.org. But for the moment, check out what we’re doing right here…
Working Group: Closing the gap between hospital and community care for patients living with and beyond cancer
Increasingly this is becoming a critical issue, especially given that cancer patients being discharged back into the community to continue living with and beyond cancer often have to jump over a large gap between secondary and primary care. We in the MKCPP have been flagging up this problem for more than 3 years now. It is gratifying to see that many other localities, NHS and other groups as well as charities, are arriving at the same conclusion.
In 2016 Angela Sheldrick, Breast ANP at MKUGH was seconded by Macmillan and NHS England to initiate a project to move more treatment and especially post-treatment care onto a more workable basis in closer partnership with primary care. Although Angela’s initial remit has had a focus on breast cancer, it is intended to roll out for other tumour sites in the near future. Richard, Suze and Jaff are helping her with input from the patient’s viewpoint.
As an extension to the above the MKCPP is working on a project named “Cancer & Beyond: your way ahead” to explore the practicalities of delivering help to cancer and post-cancer patients in the community. After an initial survey to get cancer patient/carer feedback at local level, a pilot scheme started in 2016 with one of MK’s GP practices. A preliminary meeting was held at the practice for cancer patients, carers, friends and family members in autumn 2016 and was a resounding success, with many attendees keen to take the initiative further and form a micro-local cancer support group on the strength of this first meeting alone. Other MK GP practices are interested in convening similar meetings in 2017, and MKCPP members along with local Macmillan representatives plus Angela and her team will be working to roll these out over the coming year.
Cancer Education Days: Breast Cancer and beyond
In parallel with Angela Sheldrick’s initiative above, a Breast Cancer Education Day, sponsored by Macmillan Cancer Support, was held in Milton Keynes in December 2016 for breast cancer patients, their carers, families and friends. Speakers included MKUH health professionals, MK community health workers, members of the MKCPP and a representative from Macmillan Cancer Support. This event was the precursor for a larger event to be held in MK mid-2017 focusing on all tumour sites.
In addition, the MKCPP has been invited to present and attend as panellists for a national Macmillan and NHS England Cancer Education conference in Manchester in March 2017.
Working Group (TBC for 2017): Cancer awareness amongst ethnic groups in the community
A recent meeting attended by Jaff and Suze offered up a new lead into the Asian communities where, in particular, a lot of work needs to be done to increase symptom awareness and the earlier seeking of diagnosis and treatment. It is hoped that we can make significant progress with this during 2016.
Working Group: Patient Feedback Project
The Patient Journal is being distributed to all patients with new cancer diagnoses. After a break, MKCPP core members will continue to attend the Macmillan Unit to chat informally with patients and carers waiting for appointments. This is in addition to distribution of the Journals, to offer patients and carers the chance to share their feedback verbally if they prefer that to writing it down. Key points from these conversations are recorded and fed back to Cancer Services who set up an action plan for any improvements that can be made. Already several improvements suggested via feedback have been implemented, including the provision of free WiFi for everyone attending the hospital for cancer treatment, so helping patients and carers to keep in touch with their work, leisure and other pursuits online.
Working Group: Children’s Cancer
Dawn Allen from the Henry Allen Trust agreed that it would be a good idea to implement a “Junior Journal” using Milly-the-cow for even greater effect for children with cancer in MK. We discussed creating a hygienically suitable “concrete cow” toy for young patients, and since then a prototype has been created by Hobby craft: a pack including a white and black Milly piggy-back (well, cowie-bank!) some paints and a brush. We hope that the MKCPP Working Group for this initiative will take this forward in 2017.
Working Group: Sharing The Caring For Cancer in MK – Resources Directory
The second print run of Directories has run out as they are now being distributed in the diagnosis packs, and copies are also being distributed to GP surgeries and other outlets. Macmillan have refused to fund a new version of the Directory, but MKUH Cancer Services kindly have offered to pay so the revised Directory will be printed in January 2017. (Please note an up-to-date version of the Directory is available at all times online here on this site.)
Working Group: Management of Macmillan Literature at MKUHFT
This is ongoing: many thanks to Sabina and Richard who help Sam keep this increasingly complex activity in order.
Working Group: Look Good, Feel Better
Huge thanks to Gail for continuing to be our liaison link with the LGFB Charity and making all this happen, and to Sam and Fay for officiating on the part of MKUGH as well as Bosom Pals who help provide much-needed refreshments. The workshops have proven so popular that despite LGFB putting on some extra workshops, all are now fully booked up for several months.
Radiotherapy Unit and new Cancer Centre for MKUGH
The RT unit is still under discussion, but plans for the adjacent new cancer centre (for other oncology) are making good progress. In the meantime the MKUGH’s relationship with the private RT facility at Great Linford has been extended which means that many MK patients do not have to travel to Oxford.
Should the MKCPP become a charity?
At the July meeting the Partnership decided to refer to itself as a charitable organisation, but as fund-raising needs are very limited there is little point in going through the fairly complex process of registering as a charity at this stage. It was agreed to review this decision in July 2017.
The leaflet is available from the Mac Unit. This one is branded as the MKCPP, not the NHS, and is A5 in format. As we are managing to recruit new members by personal referrals at the moment, the current leaflet focuses more on explaining to people what we do and why we do it.
Public Liability Insurance
We still await absolute confirmation of our own position.
The URL is www.mkcpp.org and as you can see a lot of information has been uploaded, including the MKCPP Cancer Resources Directory. More to follow. Please use this site to keep up to date with this Tracker, plus meeting Minutes, Agendas, Diary Dates, and other relevant information which will be posted as blogs.
Hospital construction work
Please be aware, and share this, that all h*ll is still breaking loose at MKUGH extensive renovations. Allow extra time for parking. Even the multi-storey car park gets full to overflowing some mornings.
Next meeting PLEASE NOTE EARLIER TIME AND DIFFERENT VENUE
Tuesday January 11th, 2017 in the Eaglestone Meeting Room, Eaglestone Restaurant, MKUH House. 11:00 – core members … 11:30-14:00 – all.
Any questions about cancer services and support in Milton Keynes?
Get in touch now and we may well be able to help you. And please send any questions you may have to email@example.com.