Milton Keynes Cancer Patient Partnership

Sharing the Caring for Cancer in Milton Keynes

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Cancer And Beyond – an update for Milton Keynes in March 2018

March 8, 2018 by Suzan Leave a Comment

As you know, increasingly the whole picture of living with and beyond cancer is becoming a critical issue, especially given that cancer patients being discharged back into the community to continue living with and beyond cancer often have to jump over a large gap – between secondary and back to primary care.

Cancer And Beyond - an update for Milton Keynes in March 2018
Our late MKCPP member Richard Freeman, who worked so hard to get our Cancer & Beyond concept off the ground and whose wife Vanessa is now is championing the concept, with tremendous success.

We in the MKCPP have been flagging up this problem for nearly five years now. It is gratifying to see that many other localities, NHS and other groups as well as charities (including Macmillan), are arriving at the same conclusion.

In 2016, Angela Sheldrick, Breast ANP at MKUH was seconded by Macmillan and NHS England to manage Macmillan’s generic Living With & Beyond Cancer project in our locality to move more treatment, and especially post-treatment care, onto a more workable basis in closer partnership with primary care. This move was welcomed by us all in the MKCPP (… especially as we had been asking about it for four years.)

Cancer and Beyond: your way ahead

Now, the MKCPP is working on a local project named Cancer and Beyond: your way ahead to explore and facilitate delivery of help to cancer and post-cancer patients in our community, within the community, on a patient-led basis. After an initial survey to get cancer patient/carer feedback at local level, a pilot scheme started in 2016 with one of MK’s GP practices.

A preliminary meeting was held at the practice for cancer patients, carers, friends and family members, and was a resounding success, with many attendees keen to take the initiative further and form a micro-local cancer support group on the strength of this first meeting alone.

A further meeting – similarly packed to standing room only – proved to us that we’re on the right track. And a third meeting held in September 2017 proved its value beyond any doubt: nearly 40 people attended, with a packed space with standing room only. Many been to the previous two meetings and were looking forward to more.

Another GP practice decided to host a pilot meeting along similar lines. This took place early in October 2017.

This meeting was equally well attended and at one point there was standing room only in the meeting space.

Especially after the third successful group meeting at the first GP practice, other MK GP practices became interested in convening similar meetings. MKCPP members along with local Macmillan representatives plus Angela and her team will be working to roll these out over the year.

The first of the 2018 meetings was a joint group comprising attenders from the two local (Bletchley) practices

Because the previous meetings have been so successful, we decided not to try cramming everyone into the meeting rooms and/or reception areas of the two local GP practices, but instead to look elsewhere. At a meeting of the Cancer & Beyond Steering Group we were lucky enough to benefit from one member’s strong connections with Bletchley/MK College, who kindly offered us accommodation for our meeting on March 8th.

This meeting attracted an audience of more than 50 patients, carers and other interested parties who enjoyed a meeting theme of  “exercise with and beyond cancer” at the Bletchley campus of MK College … with presentations and a panel discussion facilitated by the MKCPP with speakers as follows:

Willen Hospice physiotherapist Nicky McKinnon
Dr Andy Potter (GP, Whaddon Medical Centre)
Dr Adam Staten (GP, Red House),
Macmillan ANP Fay Grech-Marguerat
Macmillan ANP Sam Timmins

Where next for Cancer & Beyond?

Interest also has been expressed by adjacent NHS / CCG GP practices in holding Cancer And Beyond meetings, including a GP practice which straddles the border between MK and West Central Bedfordshire. The Practice Manager concerned attended the March 8th meeting at Bletchley College and we hope that we will be able to launch a pilot meeting at this “borderline” GP practice in the near future.

At the same time, interest has been expressed in these meetings by patient representatives involved with a number of other West Central Bedfordshire GP practices, and we hope that the initiative will spread across there into the MK/Bedford/Luton & Dunstable STP as well as the East of England Cancer Alliance, both of which border on to Milton Keynes.

In addition we hope the initiative will spread to one of our other neighbouring regions, the Thames Valley Cancer Alliance.

For more information on our Cancer And Beyond workshops please drop us a line on info@mkcpp.org.

Filed Under: Cancer services, GP practices, Latest Tagged With: cancer and beyond, cancer information milton keynes, cancer-care-milton-keynes, milton-keynes-cancer-information

MKCPP meeting agenda for March 13th, 2018

March 2, 2018 by Suzan Leave a Comment

AGENDA: Tuesday March 13th 2018  

Eaglestone Restaurant Function Room – (core members 11:30) 12.00 – 2.30 

Item #1 – Welcome and Introductions

**Apologies

**Minutes of previous meeting, matters arising, action points  [Read more…]

Filed Under: Agendas, Latest Tagged With: cancer-information-meeting-milton-keynes, cancer-meeting-milton-keynes, milton-keynes-cancer-meeting

MKCPP meeting minutes January 10th, 2018

March 2, 2018 by Suzan Leave a Comment

January 2018 – Wednesday 10th

Eaglestone Function Room 11.30 – 2.00

MINUTES

[Read more…]

Filed Under: Latest, Meeting minutes Tagged With: cancer help milton keynes, cancer information milton keynes, cancer support milton keynes, milton-keynes-cancer-information

Please support MK’s Esther Hutson for London Marathon!

February 16, 2018 by Suzan Leave a Comment

Let’s hear it for Esther Hutson, daughter of MKCPP member and throat cancer survivor Trevor Hutson and his wife/carer Sally. Esther is running the London Marathon this year to raise money for laryngectomy patients nationwide. Trevor is also a member of Head & Neck Cancer – MK and of Milton Keynes’ new group for head and neck cancer patients, The Swallows.

Trevor explains the background

Please support MK's Esther Hutson for London Marathon!
Trevor and Esther Hutson

“I know this is not really 100% relevant but we have a really great and long standing charity for lary’s called NALC – National Association of Laryngectomy Clubs. They are an organisation that provide information for larys and their carers. They help support Clubs and groups. They provide lots of free important accessories such as emergency wristbands, emergency cards, contacts , dvds, car window stickers etc.

Please go to their website to have a look (as they do ship worldwide) http://www.laryngectomy.org.uk/ and they are always pleased to help us all.

Our daughter Esther, on hearing their desperate plight for funding decided to run the London Marathon on behalf of all us larys who are unable to endure a twenty six mile run! We are hoping it will increase awareness of neck breathers and their plight. [Read more…]

Filed Under: Blogs, Latest, Support groups Tagged With: cancer information milton keynes, cancer Milton Keynes, head-and-neck-cancer-milton-keynes, Milton Keynes Cancer Patient Partnership, MKCPP, throat-cancer-milton-keynes

Cancer patient engagement event, MKUH December 2017- the results

February 11, 2018 by Suzan 2 Comments

Recently the Thames Valley Cancer Alliance has been conducting cancer patient engagement events around the region. Here is the summary of our event held in December 2017…

Summary Report Patient Engagement Event, Milton Keynes University Hospital

The Thames Valley Cancer Alliance (TVCA) has funded a series of engagement events taking place across Thames Valley.  The purpose of these events has been two-fold: to discuss the latest cancer patient experience survey results to consider how improvements can be made to cancer services, and secondly to introduce individuals to the Thames Valley Cancer Alliance which was established in February 2017.

The National Cancer Patient Experience Survey (CPES) is a questionnaire distributed to patients who have received cancer treatments including surgical, medical and clinical treatments.  The survey aims to provide an insight into the care experienced by cancer patients across England and allows Trusts and Clinical Commissioning Groups to understand their individual performance and identify areas for local improvement. A full summary of results is publicly available online via http://www.ncpes.co.uk/index.php/reports/2016-reports/national-reports-1 where results for individual hospitals and clinical commissioning groups can also be accessed.

The event in MK: Michael Mawhinney opened the event with introductions to what the TVCA is and to provide an overview of the CPES and results for Milton Keynes University Hospital (MKUH).  Across 3 tables, 3 questions were asked of attendee’s.  A summary of the response to each question will be found in this report.  During discussions, Lead Cancer Nurse Sally Burnie provided an update for attendee’s about the current status of the new cancer centre build and plans for radiotherapy services.  Suzan St Maur then provided an overview of the role of the Milton Keynes Cancer Patient Partnership (MKCPP) and facilitated a discussion with the audience regarding some of the current challenges faced within the cancer care arena, including the roles of Macmillan, the TVCA and MKUH. [Read more…]

Filed Under: Blogs, Cancer services, Latest Tagged With: milton keynes cancer results, milton keynes cancer services, milton-keynes-cancer-information, thames valley cancer alliance

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Recent Posts

  • Cancer And Beyond – an update for Milton Keynes in March 2018
  • MKCPP meeting agenda for March 13th, 2018
  • MKCPP meeting minutes January 10th, 2018
  • Please support MK’s Esther Hutson for London Marathon!
  • Cancer patient engagement event, MKUH December 2017- the results

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