November 14th saw the MKCPP’s AGM, incorporated into our regular meeting and it was very interesting indeed, with guest speakers Frankie O’Neill from the late Deb James’s superb brainchild, “Cancer In The Workplace,” and Chris Lewis who came down from London to tell us about “Chris’s Cancer Community” and its worldwide activities. Minutes will be up here on the website soon.
MKCPP AGM NOV 14th 2017: CHAIR’S REPORT
Key events in 2017 included 3 x Cancer & Beyond workshops (plus 1 late 2016) at 2 GP surgeries, all successful with greater numbers attending than anticipated. Aim is to get more surgeries running the workshops. MKCPP to help get them started but then leave them to run them in-house, with background advice and support from MKCPP as necessary.
Most of year we have been wandering between TV and EofE Cancer Alliances, and have a relationship with both! East of England CA is rather more advanced with patient engagement than Thames Valley CA. We have been asked to contribute to the reformation of meaningful patient engagement in the TVCA region and are doing so currently (November 2017).
Regular attendance at our meetings now comes to a total of 45 (dependent on availability), of whom 19 are user/carer rep “core members.”
Later in the year we had two resignations from our core members group: Jeannie Righton (patient rep) who is leaving the area, and Sabina Dawson (carer rep) who has other commitments, bringing our core group total to 17.
Other attendees include mainly HCPs and representatives of national and local cancer charities, plus most of MK’s general and TSS cancer support groups, along with various observers with a cancer connection.
Throughout the year we have enjoyed the contributions of a variety of guest speakers, including:
- Craig Macmillan, oncologist, Genesis Medical Centre
- Barbara Pearce, breast care nurse, Genesis Medical Centre
- Kim Williamson, education, Genesis Medical Centre http://www.genesiscare.co.uk/cancer-centre/milton-keynes/
- Christine Cowap, Macmillan Engagement Co-ordinator for MK and Bucks
- Michaela Tait, Macmillan Patient Experience Manager
- Sue Stannard, breast cancer patient, http://breastcancernow.org/
- Jo Bayne, from “Sweet Charity” http://sweetcharity.org.uk/
- Simon Tipping, head & neck cancer patient. http://routecanalarts.org.uk/
- Joe Harrison, CEO, MKUH
- Michael Mawhinnie, Thames Valley Cancer Alliance, patient engagement
- Chris Lewis, Chris’s Cancer Community http://www.chris-cancercommunity.com/
- Frankie O’Neill, Cancer In The Workplace http://cancerintheworkplace.co.uk/
The MKCPP website has now been live since July 2015. In that time it has received 32,420 page views, and the average number of daily visits is 153. The online version of the MKCPP Cancer Resources Directory has received 1,562 views. (Figures as at November 13th, 2017.)
Breast cancer representatives from the MKCPP and Bosom Pals participated in two Buckingham University first year medical student education evenings.
Look Good, Feel Better recently celebrated 2 years’ workshops in MK. All have been huge success. When waiting lists have built up, extra workshops have been put on, and there have been some special workshops put on for teenager cancer patients. This is an excellent example of the NHS, national and local charities working in partnership – NHS Macmillan nurses, LGFB, Bosom Pals (refreshments) and the MKCPP.
- Continue to engage in a meaningful and realistic way with both EofE and TV Cancer Alliances to ensure that patients attending MK Hospital have the best possible experience, and to share our experience and track record at local level with other groups in the two regions.
- Close involvement with the building and fitting out of the new Cancer Centre, and possibly help with local fundraising efforts towards this end
- Continuing as always to focus on improving the patient experience throughout their journey.
- Continuing the rolling-out of more Cancer & Beyond local workshops, plus dovetailing that with the national/generic “Living With & Beyond Cancer” initiatives by Macmillan and the NHS in Milton Keynes.
- Supporting further the Buckingham University students’ education through patient engagement and information sharing, at the end of their third year. To cover all tumour sites.
- Supporting HCPs where the patient/carer view is helpful.
- Supporting the bid for our own radiotherapy service at MKUH.
- Seeking ways to promote cancer symptom awareness/screening within harder-to-reach communities in Milton Keynes
(2016)-2017 MONTH BY MONTH
MKCPP won the MKUH Staff Award for Volunteer of the Year, 2016
1st Cancer & Beyond workshop at WMC Nov 24th 2016 hailed as resounding success
Dawn Allen of the Henry Allen Trust said they had now kitted out the suite on Ward 5 with a TV, DVDs etc. They were actively working with local GPs to provide more awareness, using Signs and Symptoms cards. There is also to be a GP awareness evening at MKUH organized by Dr Nina Bursell.
Over the Christmas period they made a lot of drops of presents for children at MKUH and homes.
Working with Joe Harrison they are renting a four bedroom property that was an “on call” house which had become available. It is to be called Henry’s Home and will be used by families so that they can spend time with their children without travelling long distances. It will be decorated and made really comfortable.
They are also working with the Government to ensure an 80p urine test is made available as a diagnosis tool; plus they are campaigning for more awareness.
TVSCN invited us to their Cancer Alliance Stakeholder meeting at the Kassam Stadium, Oxford to give a patient view on digital access for patients.
Feb 25th Amy Smart rallied a team of over thirty enthusiastic employees from several companies plus donations of paving slabs, astroturf, sand, cement, equipment hire and plants. We managed to do something in all three gardens so that they are now ready for patients, relatives, friends and staff to enjoy.
Thanks to MKUH Estates for putting an outside tap in the Courtyard garden so everything can be watered with ease.
2nd Cancer & Beyond Workshop held at WMC – great success.
Macmillan Conference in Manchester on 23rd March – to speak about local initiatives that MKCPP are involved in. Jaff attended.
Christine COWAP to become a non-core member of MKCPP representing Macmillan and raising awareness in our area.
The Patient Journal had been simplified so that it can be completed by a patient/carer or by an interviewer using it as a prompt. The next meeting was 31st March at 2.30 in the Mac Unit.
Lost Richard Freeman Easter Sunday, April 16th
His passion for Cancer & Beyond and local support continues.
Cancer Resources Directory 3rd printing. 1st 2 print runs x 1,000.
Jaff said that the gardens are well used and enjoyed by patients.
Macmillan Bus in MK
June 9th Macmillan Living With and Beyond Cancer Conference, Sally & Trevor shared their story and have now joined the MKCPP
Suze and Jaff invited to East of England Cancer Alliance Patient Advisory Board organised by Macmillan in Trumpington. Linda has also become a member to spread the load of travelling.
Lost Deb James July 27th
Her determination to educate employers about cancer in the workplace is being carried out by Frankie O’Neill and members of Deb’s family.
Santander were having another Community Day giving the Macmillan gardens some tlc. Friday July 27th, 2017.
The Carers Lounge in the new Main Entrance is open.
Linda & Jaff conducted an Environment Audit in Head & Neck Clinic area on 8th August. An Action plan is in place to tackle the recommendations.
Joe Harrison addressed our meeting, updated us on all cancer-related progress
MK CCG event Sept 20th, AGM
Healthwatch Event in Middleton Hall on 12 September. MKCPP stand as usual.
21st – 3rd Cancer & Beyond workshop, WMC – also great success
Introduction to renewed efforts at obtaining patient engagement, TVCA – Michael Mawhinney
1st Cancer & Beyond Workshop, Red House – great success
DBS checks due to be implemented this month so MKCPP core members may talk to cancer patients and obtain their feedback, on the wards.
TVCA workshop for prospective patient reps – the date is set for 8th December at the Community Centre, Oldbrook.
Suzan St Maur
November 14th, 2017