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MKCPP meeting minutes May 9th 2018

July 14, 2018 by Suzan Leave a Comment

MKCPP

Milton Keynes Cancer Patient Partnership

 May 9th 11.30–14:00 Eaglestone Function Room

 

MINUTES

 

Present:

Sally Burnie                                          Head of Cancer Services

Rose Coppard                                       User rep, Lower GI & volunteer – Mac Unit

Claire Crick                                           User rep, Breast

David Buckley                                      MK Cancer Prostate Support

Christine Cowap                                  Macmillan Engagement Co-ordinator for MK and Bucks

Jen Davies                                             Cancer Manager

Carol Hewett                                       User rep, Upper GI

Jaff Newton                                          MKCPP Secretary, User rep, Breast

Suzan St Maur                                     MKCPP Chair, User rep, Breast, Bladder, Carer

Jean Mattinsley                                   User rep – Carer, Healthwatch rep

Vanessa Freeman Gwynn                 User rep, Carer

Trevor Hutson                                      User rep, Laryngeal cancer patient

Sally Hutson                                         User rep, Carer

Linda Wilson                                         User rep, Breast

Tony Kelly                                              Volunteer – Mac Unit and car driver

Andrea Kingston                                 GP retired – Hanslope & District Cancer Wellbeing & Support Group

Angela Sheldrick                                  Breast re-design Project Manager

Kate Iseton                                           Lymphoedema nurse – Willen

Annette Waters                                  Caring for carers

Sophie Austin                                       Cancer Dietitian – Wellbeing team

Dave Wakely                                        “From Me to You Event” (writing letters to cancer pts.)

Heather Oddy                                      Administrative project officer for Volunteering Matters

Caroline Tovey                                     Cancer Psychologist -Wellbeing team

Zak (Srinivasa Rajamani)                   Cancer Physiotherapist – Wellbeing team

Amanda Maguire                               EOL ANP

Lisa Robson                                           Loved Forever (lasting memories of loved ones)

 

 

Apologies:

Elizabeth Bradley                                User rep, Breast

Martin Bell                                           User rep prostate group

Nicky Beboeau                                    Support and Information

Sam Timmins                                       Macmillan Cancer Information & Support Manager

Amanda Naylor                                   H&N ANP

Steph McPherson                               User rep, Breast & Ovarian

Ray McPherson                                   User rep, Carer

Sue Fitzgerald                                      Gynae ANP

Jeanette Wells                                     Gynae ANP

Michaela Tait                                       Patient Experience Manager

Sam Younan                                         User rep, Chair Prostate group

Graham Anderson                              User rep

Bob Gould                                             Red House PPG Observer

Vanda Gould                                        Red House PPG

Revd. Sarah Crane                              Team Chaplain

Paul Maclean                                       CRUK Volunteer

Sally Leverett                                       Willen Hospice

Geoff Saunders                                    User rep, Lymphoma – REMAP

Carly Polti                                             Lymphoedema nurse – Willen

Barbara Saunders                               User Rep, Lymphoma

David Stevenson                                  User rep, MK Moles (skin)

Carol Ord                                              Cancer Alliance STP Programme Manager (Bedfordshire, Luton & MK)

John Sorrell                                           GP retired – Hanslope & District Cancer Wellbeing &Support Group

Kim Weston                                          Bereavement Officer

Tina Churchill                                       Macmillan

Alan Hastings                                       Chair, PPG Whaddon Medical Centre

Gail Spooner                                        User rep, Breast, Lead LGFB

 

Future dates for your diary: please note the varying times.

July Tue 10th – 11.30 – 14:00 – Eaglestone Function Room

Sept Wed 12th – 11.30 – 14:00 – Eaglestone Function Room

Nov Tue  13th –  12:00 – 14:30 – Eaglestone Function Room

 

 

 

 

Item #1 – Welcome

**Suze welcomed everyone, especially our guest speakers, Annette Waters, Dave Wakely, Lisa Robson, Heather Oddy, Sophie, Caroline and Zak from the Wellbeing team.

 

**Apologies

These were noted including Tina Churchill, MacMillan Partnership Quality Lead

 

**Minutes

Amendments – the ground breaking date for the Cancer Unit is July not May. H&N Sally’s daughter was hoping to raise £1000 not £10000

After the Minutes were amended they were agreed and signed by the Chair.

There were no matters arising.

 

Item #2 – Round-robin introductions

 

Item #3 –Guest speakers

** Annette Waters

Annette introduced herself as an NLP trainer, coach, nutritionist and hypnotherapist helping people and those they care for through anxiety, depression and other mental health challenges. She gave us information about the courses she runs and what encouraged her. She told us about her personal experience of dealing with mental health issues and how she sort help for herself in order to cope effectively.

An interesting discussion followed.

 

**Dave Wakely

Dave, told us about the inspirational letter writing charity “From me to you” and the workshop being held in MK on 14th June. He spoke about the benefits of writing a letter to a friend with cancer as opposed to sending an email or text, or even a face to face conversation which can often be so difficult. The careful thought that needs to go into it … the pleasure of receiving a letter that can boost ones spirit, make someone’s day and know another person cares… It is an art we should not lose. For more information see the website – From me to you.

 

**The Wellbeing Team

Sophie Austin – Cancer Dietician

Sophie told us about her new post, working in Ward 22 and outpatient clinics, helping patients from diagnoses to living with and beyond cancer. She is also participating in the “HOPE” course and speaking at support groups.

Caroline Tovey – Cancer Psychologist

Caroline said she was developing her role within the team, working one-to-one with patients during and after treatment and also, importantly, supporting staff.

Zak (Srinivasa Rajamani) – Cancer Physiotherapist

Zak as well told us of his background in specialist palliative care and the benefits of physical exercise during and after treatment; also taking part in group activities to socialise, being outside in the fresh air and setting realistic goals. He, too, will be talking to support groups locally and working with inpatients and others.

A really good discussion followed. This service has been long awaited and it has been made possible by the funding from Macmillan. They will also liaise closely with Willen to ensure joined-up care.

 

Item #4 – MKUH – Sally/Jen

Sally started with the new staff appointments. Phillip Ball is lead for Palliative Care and End of Life with a two year post, and she hopes he will attend our meetings. She welcomed the new Wellbeing Team and the benefits they will bring to patients and staff. A new Oncologist, Dr Vasarmee from South Africa, would cover gynae patients, working first as a locum for twelve months before the post becomes substantive.

She spoke about the Trust sitting between the two cancer Alliances – Thames Valley for the majority of Cancer pathways and East of England for everything else. She said MK had been selected with funding by the STP to lead on the FIT programme for bowel screening. She said that she will tell us at the July meeting about the actions taken as a result of the National Patient Cancer Survey.

She updated us on the New Cancer Centre, starting with the public fundraising launch on 7th June, with a Breakfast meeting, a launch event in the Intu centre, and an afternoon tea party in the Macmillan garden for patients, carers, volunteers and staff.

She invited volunteers to do a mock CQC inspection of Cancer Services before the official inspection in the autumn. Crib sheets will be provided. More details to follow.

She congratulated the Cancer Services team on meeting the three main targets which is no mean feat: a lot of work has to take place to ensure that patients are seen within the target time and that their pathways are clear and timely.

David asked about having radiotherapy on site. Sally responded by saying that the Trust was still committed but realistically it was at least two years away – but a foot print had been secured. Meanwhile the majority of patients would continue to be treated locally at Genesis Care, and complex cases would go to a specialist centre.

Jen thanked us for attending the AGMs and said she would be asking for reps to attend the IVs (Internal Validations) that need to be completed by the end of June. She also requested donations of any wedding items that can be used when weddings take place at the hospital for very ill patients.

 

Item #5-  External Updates

**Macmillan

Chris said that Tina Churchill was unable to attend the meeting. The Bertie Bus will be returning to MK in July, the 16th – 20th, and she would appreciate some volunteers but will provide more information nearer the time. She said the TV Cancer Alliance were holding interviews for the replacement of Michael Mawhinney.
She said she was working hard to contact patient groups and would welcome suggestions.

**Bosom Pals

Linda said the committee was grappling with GDPR to get everything in place by the meeting on 1st May. They get new members each month. She and Jaff would be attending the Breast AGM on 27th April. The May meeting is Acupuncture by Gabi from Genesis.

For more information see website – http://bosompals-miltonkeynes.btck.co.uk

 

**Lymphoma

 

7th June  Sharon Kinge,  Age UK
2nd Aug  Erika, Lymphoma Assn.

**MKSuperMoles

 

See Facebook page for more details of meetings – https://www.facebook.com/groups/MKSuperMoles/

 

**MK Prostate Cancer Support

David said that he would provide details of the PSA testing day to be held in October.

He said he had met with the medical students arranged by Jane Wale to share his cancer experience and had thoroughly enjoyed it.

He indicated that although the prostate group was well attended there were few active members. Unfortunately this is a problem in many groups.

 

**Head and Neck

Sally said that the Head and Neck Cancer Support Group would now be meeting in the Swan Revived Hotel in Newport Pagnell on the second Wednesday of the month. Sophie Austin, dietician, will be one of their speakers and also Sophie Boyle, a speech therapist.

She also proudly told us that her daughter Esther had completed her London Marathon run in 6hours 20minutes and raised the amazing sum of £3000+ for the National Laryngectomy Patient Group

We send her our congratulations, very well done.

 

** Hanslope & District Cancer Wellbeing & Support Group

Andrea said that at a combined meeting with the Carers group, they were having a presentation from Amanda Maguire, the End of Life ANP.

 

**Healthwatch

Jean said that they had produced a New Strategy and they encourage everyone to join up and have their say in local healthcare.

 

**Willen

Kate reported that Willen had had medical students gaining experience in all departments at the Hospice for over a month. She welcomed the link with the new hospital Wellbeing team and said it will benefit both patients and staff. She said that the breast/lymphoedema programme was continuing to work well and the walking groups lead by Nicky were also working well.

 

**Environment audits

Jaff – we need to arrange more for 2018, when everyone is DBS checked.

 

*Cancer and Beyond

Vanessa said that the next support meeting hosted by MK College would be on 7th June but the format would be changed to having small tables to encourage group discussion before and after the speaker.

Suze said that the Asplands surgery was interested and also one in Stony Stratford, both practice managers would be invited on 7th June.

 

**Website – www.mkcpp.org

For updates between meetings, check out the Tracker page on our website, http://mkcpp.org/tracker/

 

**LGFB

The dates for this year are, 24th,May, 21st June, 19th July, 16th August, 20th September, 18th October,15th November. It is hoped that two sessions for teenagers will be arranged.

 

**Volunteering matter Driving Scheme

Heather introduced herself and said she had been working in health related jobs with older vulnerable people for 15 years. She was now developing the driving scheme locally, funded by MK Council. It provides transport from a patient’s home to a huge variety of appointments and can wait for two hours and then take them home, anything longer can be arranged for a later pick up. There are 10 drivers in MK who are more than just a driver, they care and are rated highly by patients and GPs. Journeys can be booked and then coordinated by staff in MK. They usually require three days’ notice but are frequently flexible. It costs £15 per year to join the scheme and then 45p per mile for the journey.

Discussion followed about other local schemes and what happens when funding runs out. But generally the scheme was applauded and it is hoped that it will continue.

 

**Lisa Robson explained her new business, Loved Forever, which helps people compile lasting memory items, albums, etc. from deceased loved ones, for families to keep. She intends to contact Willen and also the EOL team at MKUH to see if the service is of interest to their patients and families.

 

**Amanda End of Life ANP

Amanda left leaflets about the day course she would be running during Dying Matters week, all welcome.

 

Item #6 – AOB

**Courtyard gardens, Jaff said Santander were coming in with a team to give the larger garden a makeover in preparation for the fund raising launch. Help with the gardens is always welcomed.

 

 

**The meeting closed at two minutes early at 13.58 hrs

 

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