Milton Keynes Cancer Patient Partnership
September Wednesday 13th, Eaglestone Function Room 11.30 – 2.00
Gail Spooner User rep, Breast, Lead LGFB
Sally Burnie Head of Cancer Services
Jen Davies Cancer Manager
Joe Harrison CEO MKUHT
Revd. Sarah Crane Team Chaplain
Jaff Newton MKCPP Secretary, User rep, Breast
Rose Coppard User rep, Lower GI & volunteer – Mac Unit
Angela Sheldrick Breast re-design Project Manager
Suzan St Maur MKCPP Chair, User rep, Breast, Bladder, Carer
Steph McPherson User rep, Breast & Ovarian
Amanda Naylor H&N ANP
Sam Yojnan User rep, Chair Prostate group
Jean Mattinsley User rep – Carer, Healthwatch rep
Martin Bell User rep prostate group
Carol Hewett User rep, Upper GI
Christine Cowap Macmillan Engagement Co-ordinator for MK and Bucks
John Sorrell GP retired – Hanslope & District Cancer Wellbeing &Support Group
Ray McPherson User rep, Carer
Sue Fitzgerald Gynae ANP
Michaela Tait Patient Experience Manager
Sam Timmins Macmillan Cancer Information & Support Manager
Trevor Hutson Observer- Laryngeal cancer patient
Sally Hutson Observer – Carer
Vanessa Freeman Gwynn Observer – Carer
Michael Mawhinney Quality Improvement Lead Patient Engagement, TV Cancer Alliance
Carly Polti Lymphodema nurse – Willen
Kate Iseton Lymphodema nurse – Willen
Graham Anderson User rep,
Elizabeth Bradley User rep, Breast
Andrea Kingston GP retired – Hanslope & District Cancer Wellbeing & Support Group
Barbara Saunders User Rep, Lymphoma
Claire Crick User rep, Breast
Joanne Merritt Palliative care/ EoL Lead ANP
Bob Gould Red House PPG Observer
Vanda Gould Red House PPG
Geoff Saunders User rep, Lymphoma – REMAP
Paul Maclean CRUK Volunteer
Sally Leverett Willen
Kim Weston Bereavement Officer
Shaeen Dalvi Macmillan Partnership Lead for Bucks and MK
Sabina Dawson User rep, Carer
Pamela Steer UGI CNS
Jeanette Wells Gynae ANP
Jane Douglas Macmillan Mobile Information Lead
Alan Hastings Chair, PPG Whaddon Medical Centre
Alison Sandaver Lead oncology ANP
Linda Wilson User rep, Breast
Future dates for your diary: please note the different times.
November Tuesday 14th – BICS Training Room, Oak House 12.30 – 2.30 AGM
Jan Wed 10th – 11.30am – 2pm
March Tue13th – 12noon – 2.30pm
May Wed 9th – 11.30am – 2pm
July Tue 11th – 1.30am – 2pm
Sept Wed 12th 11.30am – 2pm
Nov Tue 13th – 12noon – 2.30pm
Item #1 – Welcome
**Suze welcomed everyone, especially our guest speakers, Jo Harrison and Michael Mawhinney,
These were noted.
Item #2 – Joe Harrison CEO MKUHT
**Joe started with an overview of the hospital, highlighting the progress that had been made since his last visit. He said that A&E had met all its targets and as a result he had been invited to speak at the National Conference.
The foundations for the new multi-storey car park have been started and the next project will be the Frailty Unit next to A&E.
There is an Emergency Hub on the A5 for Ambulance, Fire and Police so taking the Ambulance facility off site. The new Frailty Unit will be located here instead.
A development agenda is in place so that there is consultant cover at MKUH seven days/week
Elective surgery is being expanded, working to capacity over the next two years.
They are working closely with MK Council, the CCG and Community Care to ensure there is a strong hospital to suit local needs.
Several questions were asked about involvement with the STP, where MKUH sits with regards to Thames Valley Cancer Alliance and East of England Cancer Alliance and the problems patients encounter in cross boundary areas – which is so stressful.
Joe said that it was important to support the Annual Members AGM on 27th September, because there were still areas that needed improvement and patient feedback was always welcome and could lead to change.
Suze suggested the need to get better at recording the patient experience and that improvements come as a result of complaints. There were several inexpensive suggestions that would make a difference such as hooks in toilets and wards for bags/handbags which would also cut down on risk of infection.
Jean asked about the Medical school. Joe replied that it was in its 4th year and going well. Applications generally were going down but Buckingham University was going up and had been given an award for teaching excellence. The new 21st century education building opens on site in February 2018.
Joe thanked MKCPP for our hard work and input which was appreciated and valued.
He left the meeting for another commitment.
Item #3 – MKUH – Sally/Jen
**Sally started with staffing saying that the advert for the three wellbeing posts (nutritionist, psychologist and physiotherapist) had gone out and would be in place for the New Year. They will work in-house but also liaise with the community.
She said there was still a shortage of chemo nurses but with creative working they were “growing” their own. Two new experienced nurses would be starting in October: one in Oncology and the other in UGI.
The National Cancer Patient Survey results were being worked through and actions plans were being put into place.
Sam interjected and said that they were getting quick wins from good practice in other hospitals, one being the new packs for patients, leaflets and banners.
Suze said that performance was seen to be good but not all the experience was good. There was need for clear information and new staff should have a good induction to ensure continuity. Local information was seen to be important.
The meeting continued –
**Christine pointed out a mistake in Item #5 Support grants are being tested in our region. After the correction the Minutes were agreed and signed by the Chair.
Suze thanked Jaff, Angela, Mike and Jean for manning the MKCPP stand at the very successful Healthwatch event in Middleton hall.
Suze reminded everyone of the CCG AGM in the Ridgeway Centre on 20th September where MKCPP would also have a stand.
Suze then told us that the funeral of our member Deb James had been really special with a cavalcade of forty minis as a tribute. Jaff and Jeannie attended.
Item #4 – Guest speaker Michael Mawhinney
** Michael gave a brief history of his background working as a cancer nurse in oncology and on cancer trials. He is at present combining his TVCA job – Quality Improvement Lead, Patient Engagement – with doing a PhD at Oxford Brookes University on the effectiveness of oral chemo drugs. He said he had heard about the work of MKCPP and that they wanted to be inclusive and have MK patient representatives active again in the TV Cancer Alliance. They were at present recruiting for patient representative to sit on the various Tumour site groups and that the advert plus what is expected of a patient representative and how to contribute the patient view had been circulated.
Suze offered to supply a document on what we do.
He also requested our help for a planned workshop with Macmillan, NHS England and HCPs in MK. Others were to take place in Oxford, Frimley and Reading. They are to discuss engagement with patients, the gaps and ways to improve. More details will be forwarded nearer the time.
Addendum: the date is set for 8th December at the Community Centre, Oldbrook.
Item #5 – Working groups
**Cancer and Beyond
Angela said that the third meeting at Whaddon Medical Centre will be on 21st September and the first Red House surgery meeting on Tuesday 3rd October.
**Cancer Patient Feedback
Suze said that we are still waiting for the DBS checks to be arranged by Michaela.
Michaela replied that the DBS check that our members would have would be an enhanced one and would be arranged on the date of our next meeting if possible, in the Volunteer Office..
She said they were developing a variety of patient groups that anyone interested in could join, e.g. Patient Information, Accessibility, Catering and Food.
Action – details to follow.
**Cancer Resources Directory
Supplies will be in the Mac Unit. Please sign for the number of copies taken and where they are for. Suze will continue to monitor and update the online version as each change/addition arises.
Jaff said the gardens were looking good and were appreciated, but help with maintenance is always needed.
** Macmillan Support Unit
Sam reminded everyone about the Macmillan Coffee Morning to be held on 29th September
10.00 – 12.00. Any support welcome to serve, make a cake or just buy.
She said that the Choir Group – Beyond the “C” – held in the Peartree Centre every third Friday of the month, was going from strength to strength with over 45 members. They were also singing at community and health events and were making a recording.
An Information Point has been set up in MK Library in conjunction with Macmillan.
The next HOPE course would be on 8th October and run for six weeks, they are proving to be popular and really beneficial.
Cancer Journey Board has been set up in the Unit.
**Website – www.mkcpp.org
Suze continues to monitor and update. She said that she would post any new information/dates as requested rather than having to wait for a meeting.
The offer still stands from Suze if members want to learn how to use, update and add to the website.
Jaff said that the Head & Neck Clinic area audit had taken place on 8th August, the report submitted and the Action plan was awaited.
Chris pointed out the error in the July Minutes. These were corrected before being signed.
Look Good Feel Better is now two years old and bookings are being taken for 2018. The last session is November 16th.
Gail said Jan Roberts, one of the beauty therapist volunteers, had been appointed as her deputy.
There was discussion about the recruitment of beauty therapists and Sally said she would make contact with colleagues at MK College to generate interest from the students on the beauty course.
**Information / Literature / Leaflets
Item #6 – Support Groups and other updates
**Bosom Pals MK
For more information see website – http://bosompals-miltonkeynes.btck.co.uk
**Bladder Group – The “Pee-Wees” –
No update. Group dormant.
The Carers Lounge in the new Main Entrance is open.
**Health and Wellbeing Patient Support MKUH
No new update.
All meetings are held at 2pm in the Peartree Centre, Chadds Lane. – for more information see: http://lymphomas.org.uk/information-and-support/lymphoma-support-groups/milton-keynes
**Prostate Group MKPCS
Sam and Martin reminded everyone about free PSA testing on 7th October from 10.00am – 1.00pm in Wolverton Christian Foundation. There is no age limit, usually 50+ but younger if it runs in the family. See website https://www.prostatemk.org/
**MK Supermoles – Skin Cancer Support group
See their Facebook page for more details of meetings.
**Head and Neck
Amanda said that they had marked the World Head & Neck Cancer Day with a stand in the Main Reception.
John said that once again information is not reaching the border villages such as Hanslope.
Jean said the new setup was still bedding in. They are trying to recruit new members so she encouraged everyone to sign up. She said it was not necessary to be an active member to receive the newsletter. She said there were 80 stands at the Healthwatch Event and it was deemed to be a success.
Discussion followed about its use for networking.
**Item #7 – Miscellaneous
**Carly said that there was a second HOPE course running at Willen Hospice. Good news a third developmental nurse was being appointed to improve the busy Lymphoedema service.
**Sue said that the Gynae nurses had set up a successful Telephone Assessment for patients with early stage endometrial cancer. At their clinic appointment they are given a check list of questions that will be asked and a convenient time is arranged for the call to take place. The results are recorded and reported to their GP. These calls are alternated with a physical clinic. They are aimed at reducing clinic numbers and patients’ time but they are not compulsory.
**Rose said that the Pathology tour had been a huge success and was really instructive, others agreed.
**Clare said that she had been attending the Breast Screening Management Board for a number of years and that she would be stepping down due to family commitments so she would appreciate someone else to take on the job. She explained that there were just three meetings per year and that they covered local screening issues, equipment, recall, hard to reach groups and national issues. She said she prepared a report for each meeting which was based on the MKCPP Minutes and this was welcomed. Jaff does attend when able.
Action – please contact Jaff if interested.
**The meeting closed at 14.00 hrs
Chair signature…………………………………………………………………… Date ………………………