Milton Keynes Cancer Patient Partnership

Sharing the Caring for Cancer in Milton Keynes

Community Action: Milton Keynes and Macmillan – new cancer survey

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Community Action: MK are working with Macmillan to try and develop a better understanding of the experiences of BAME and faith communities in Milton Keynes in relation to cancer and cancer services. Existing research suggests that these groups tend to have more negative experiences of cancer services. We want to investigate how this applies in Milton Keynes. Community Action: MK have designed this survey to help us explore this topic.

We are looking for as many people as possible to take part. The survey is open to anyone in Milton Keynes, from any ethnic or religious background, whether or not they have had direct experience of cancer. It should take 5-10 minutes to complete.

The results will help us create a report discussing experiences of BAME and faith communities in Milton Keynes, and make some suggestions for improving support and access for these groups. Macmillan will use these suggestions in their work.

All responses are anonymous by default. There is an option to leave your email address if you would be happy to be part of additional workshops for this project or for Macmillan to contact you about further research, but this is optional.

Please note, this is not a medical questionnaire. If you or someone you know is worried about their health, we encourage you to contact a medical professional for further advice.

To take the questionnaire, click here.

More about Community Action: MK – watch this video that explains what they do:

MKCPP members help medical students by sharing cancer experiences

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At a recent Zoom meeting of the University of Buckingham’s Cancer and Pathology Society (associated with MKUH), medical students staged a Q and A discussion with two members of the MKCPP who shared their experiences of their own cancer journeys.

By kind permission of the Society and the two MKCPP members concerned, here now is the video of the discussion for you to share.

Help keep Henry’s last wish alive

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Henry Dylan Allen was just two years old in February 2012 when he was diagnosed with a terrible childhood cancer: Stage 4, High Risk, MYCN Amplified Neuroblastoma. Hopefully, you will know his story – he is a local superhero.

Henry Allen

Henry went through two years of gruelling tests, painful treatments and surgeries yet Henry smiled. His happiness and bravery were astonishing.

‘Henry’s Happiness’ won the hearts of our community and the fundraising began – fundraising initially for treatment abroad. Henry’s condition deteriorated and there were no more options. Henry came home and sadly on the 20th October 2013 superhero Henry gained his angel wings. Gone but never forgotten.

But, as with all superheroes, Henry had dreamt BIG and he made his Mummy and Daddy “pinkie promise” to follow his dreams and help the other children. The Henry Allen Trust (THAT) was born.

[Read more…]

Milton Keynes cancer patients & carers to have Telephone Buddy service from Macmillan

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 Christine Cowap, our local Macmillan Engagement Lead, shares the following:

“As part of our response to the Coronavirus pandemic, we have built on the existing good practice of our local volunteer buddy schemes and are now offering a Telephone Buddying service to people living with cancer across the UK. This is will see trained and supported Macmillan volunteers offering a weekly telephone chat service; providing a listening ear and low level emotional support, as well signposting to our and other appropriate services.”


“Following this link will take you to the page on our website where you can refer someone, or the link can be shared for people to self-refer. Anyone referred will have an initial conversation and assessment with a Macmillan member of staff, and will then be matched with a volunteer buddy. Our experienced Macmillan volunteer managers will be supervising and supporting the buddies throughout the process, and service users will also have a named Macmillan member of staff to contact if necessary.”

For up-to-date news, discussions and the chance to join in with your views, please visit and join the MKCPP Facebook group.