Milton Keynes Cancer Patient Partnership

Sharing the Caring for Cancer in Milton Keynes

MKCPP meeting minutes July 2018

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Tue 10th July 2018 11.30–14:00 Eaglestone Function Room MKUH

MINUTES

 

Present:

Elizabeth Bradley                                User rep, Breast

Sally Burnie                                          Head of Cancer Services

Rose Coppard                                       User rep, Lower GI & volunteer – Mac Unit

David Buckley                                      MK Cancer Prostate Support

Christine Cowap                                  Macmillan Engagement Co-ordinator for MK and Bucks

Jen Davies                                             Cancer Manager

Carol Hewett                                       User rep, Upper GI

Jaff Newton                                          MKCPP Secretary, User rep, Breast

Suzan St Maur                                     MKCPP Chair, User rep, Breast, Bladder, Carer

Jean Mattinsley                                   User rep – Carer, Healthwatch rep

Nicky Beboeau                                    Support and Information

Sam Timmins                                       Macmillan Cancer Information & Support Manager

Steph McPherson                               User rep, Breast & Ovarian

Ray McPherson                                   User rep, Carer

Linda Wilson                                         User rep, Breast

Andrea Kingston                                 GP retired – Hanslope & District Cancer Wellbeing & Support Group

John Sorrell                                           GP retired – Hanslope & District Cancer Wellbeing &Support Group

Revd. Sarah Crane                              Team Chaplain

Sophie Austin                                       Cancer Dietitian – Wellbeing team

Caroline Tovey                                     Cancer Psychologist -Wellbeing team

Zak (Srinivasa Rajamani)                   Cancer Physiotherapist – Wellbeing team

Amanda Maguire                               EOL ANP

Michaela Tait                                       Patient Experience Manager

Phillip Bell                                             EOL Lead

 

Apologies:

Claire Crick                                           User rep, Breast

Martin Bell                                           User rep prostate group

Vanessa Freeman Gwynn                 User rep, Carer

Trevor Hutson                                      User rep, Laryngeal cancer patient

Sally Hutson                                         User rep, Carer

Amanda Naylor                                   H&N ANP

Tony Kelly                                              Volunteer – Mac Unit and car driver

Sue Fitzgerald                                      Gynae ANP

Jeanette Wells                                     Gynae ANP

Graham Anderson                              User rep

Bob Gould                                             Red House PPG Observer

Vanda Gould                                        Red House PPG

Heather Oddy                                      Administrative project officer for Volunteering Matters

Angela Sheldrick                                  Breast re-design Project Manager

Kate Iseton                                           Lymphoedema nurse – Willen

Geoff Saunders                                    User rep, Lymphoma – REMAP

Carly Polti                                             Lymphoedema nurse – Willen

Barbara Saunders                               User Rep, Lymphoma

David Stevenson                                  User rep, MK Moles (skin)

Carol Ord                                              Cancer Alliance STP Programme Manager (Bedfordshire, Luton & MK)

Kim Weston                                          Bereavement Officer

Tina Churchill                                       Macmillan

Alan Hastings                                       Chair, PPG Whaddon Medical Centre

Gail Spooner                                        User rep, Breast, Lead LGFB

 

Future dates for your diary: please note the varying times.

Nov Tue 13th –  12:00 – 14:30 – Eaglestone Function Room

All meetings during 2019 will be in the Eaglestone Function Room from 12.00 – 2.00

January Wed – 9th

March Tue – 12th

May Wed – 8th

July Tue – 9th

September Wed – 11th

November Tue – 12th

  [Read more…]

MKCPP meeting minutes May 9th 2018

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MKCPP

Milton Keynes Cancer Patient Partnership

 May 9th 11.30–14:00 Eaglestone Function Room

 

MINUTES

 

Present:

Sally Burnie                                          Head of Cancer Services

Rose Coppard                                       User rep, Lower GI & volunteer – Mac Unit

Claire Crick                                           User rep, Breast

David Buckley                                      MK Cancer Prostate Support

Christine Cowap                                  Macmillan Engagement Co-ordinator for MK and Bucks

Jen Davies                                             Cancer Manager

Carol Hewett                                       User rep, Upper GI

Jaff Newton                                          MKCPP Secretary, User rep, Breast

Suzan St Maur                                     MKCPP Chair, User rep, Breast, Bladder, Carer

Jean Mattinsley                                   User rep – Carer, Healthwatch rep

Vanessa Freeman Gwynn                 User rep, Carer

Trevor Hutson                                      User rep, Laryngeal cancer patient

Sally Hutson                                         User rep, Carer

Linda Wilson                                         User rep, Breast

Tony Kelly                                              Volunteer – Mac Unit and car driver

Andrea Kingston                                 GP retired – Hanslope & District Cancer Wellbeing & Support Group

Angela Sheldrick                                  Breast re-design Project Manager

Kate Iseton                                           Lymphoedema nurse – Willen

Annette Waters                                  Caring for carers

Sophie Austin                                       Cancer Dietitian – Wellbeing team

Dave Wakely                                        “From Me to You Event” (writing letters to cancer pts.)

Heather Oddy                                      Administrative project officer for Volunteering Matters

Caroline Tovey                                     Cancer Psychologist -Wellbeing team

Zak (Srinivasa Rajamani)                   Cancer Physiotherapist – Wellbeing team

Amanda Maguire                               EOL ANP

Lisa Robson                                           Loved Forever (lasting memories of loved ones)

 

 

Apologies:

Elizabeth Bradley                                User rep, Breast

Martin Bell                                           User rep prostate group

Nicky Beboeau                                    Support and Information

Sam Timmins                                       Macmillan Cancer Information & Support Manager

Amanda Naylor                                   H&N ANP

Steph McPherson                               User rep, Breast & Ovarian

Ray McPherson                                   User rep, Carer

Sue Fitzgerald                                      Gynae ANP

Jeanette Wells                                     Gynae ANP

Michaela Tait                                       Patient Experience Manager

Sam Younan                                         User rep, Chair Prostate group

Graham Anderson                              User rep

Bob Gould                                             Red House PPG Observer

Vanda Gould                                        Red House PPG

Revd. Sarah Crane                              Team Chaplain

Paul Maclean                                       CRUK Volunteer

Sally Leverett                                       Willen Hospice

Geoff Saunders                                    User rep, Lymphoma – REMAP

Carly Polti                                             Lymphoedema nurse – Willen

Barbara Saunders                               User Rep, Lymphoma

David Stevenson                                  User rep, MK Moles (skin)

Carol Ord                                              Cancer Alliance STP Programme Manager (Bedfordshire, Luton & MK)

John Sorrell                                           GP retired – Hanslope & District Cancer Wellbeing &Support Group

Kim Weston                                          Bereavement Officer

Tina Churchill                                       Macmillan

Alan Hastings                                       Chair, PPG Whaddon Medical Centre

Gail Spooner                                        User rep, Breast, Lead LGFB

 

Future dates for your diary: please note the varying times.

July Tue 10th – 11.30 – 14:00 – Eaglestone Function Room

Sept Wed 12th – 11.30 – 14:00 – Eaglestone Function Room

Nov Tue  13th –  12:00 – 14:30 – Eaglestone Function Room

  [Read more…]

Cancer And Beyond – an update for Milton Keynes in March 2018

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As you know, increasingly the whole picture of living with and beyond cancer is becoming a critical issue, especially given that cancer patients being discharged back into the community to continue living with and beyond cancer often have to jump over a large gap – between secondary and back to primary care.

Cancer And Beyond - an update for Milton Keynes in March 2018
Our late MKCPP member Richard Freeman, who worked so hard to get our Cancer & Beyond concept off the ground and whose wife Vanessa is now is championing the concept, with tremendous success.

We in the MKCPP have been flagging up this problem for nearly five years now. It is gratifying to see that many other localities, NHS and other groups as well as charities (including Macmillan), are arriving at the same conclusion.

In 2016, Angela Sheldrick, Breast ANP at MKUH was seconded by Macmillan and NHS England to manage Macmillan’s generic Living With & Beyond Cancer project in our locality to move more treatment, and especially post-treatment care, onto a more workable basis in closer partnership with primary care. This move was welcomed by us all in the MKCPP (… especially as we had been asking about it for four years.)

Cancer and Beyond: your way ahead

Now, the MKCPP is working on a local project named Cancer and Beyond: your way ahead to explore and facilitate delivery of help to cancer and post-cancer patients in our community, within the community, on a patient-led basis. After an initial survey to get cancer patient/carer feedback at local level, a pilot scheme started in 2016 with one of MK’s GP practices.

A preliminary meeting was held at the practice for cancer patients, carers, friends and family members, and was a resounding success, with many attendees keen to take the initiative further and form a micro-local cancer support group on the strength of this first meeting alone.

A further meeting – similarly packed to standing room only – proved to us that we’re on the right track. And a third meeting held in September 2017 proved its value beyond any doubt: nearly 40 people attended, with a packed space with standing room only. Many been to the previous two meetings and were looking forward to more.

Another GP practice decided to host a pilot meeting along similar lines. This took place early in October 2017.

This meeting was equally well attended and at one point there was standing room only in the meeting space.

Especially after the third successful group meeting at the first GP practice, other MK GP practices became interested in convening similar meetings. MKCPP members along with local Macmillan representatives plus Angela and her team will be working to roll these out over the year.

The first of the 2018 meetings was a joint group comprising attenders from the two local (Bletchley) practices

Because the previous meetings have been so successful, we decided not to try cramming everyone into the meeting rooms and/or reception areas of the two local GP practices, but instead to look elsewhere. At a meeting of the Cancer & Beyond Steering Group we were lucky enough to benefit from one member’s strong connections with Bletchley/MK College, who kindly offered us accommodation for our meeting on March 8th.

This meeting attracted an audience of more than 50 patients, carers and other interested parties who enjoyed a meeting theme of  “exercise with and beyond cancer” at the Bletchley campus of MK College … with presentations and a panel discussion facilitated by the MKCPP with speakers as follows:

Willen Hospice physiotherapist Nicky McKinnon
Dr Andy Potter (GP, Whaddon Medical Centre)
Dr Adam Staten (GP, Red House),
Macmillan ANP Fay Grech-Marguerat
Macmillan ANP Sam Timmins

Where next for Cancer & Beyond?

Interest also has been expressed by adjacent NHS / CCG GP practices in holding Cancer And Beyond meetings, including a GP practice which straddles the border between MK and West Central Bedfordshire. The Practice Manager concerned attended the March 8th meeting at Bletchley College and we hope that we will be able to launch a pilot meeting at this “borderline” GP practice in the near future.

At the same time, interest has been expressed in these meetings by patient representatives involved with a number of other West Central Bedfordshire GP practices, and we hope that the initiative will spread across there into the MK/Bedford/Luton & Dunstable STP as well as the East of England Cancer Alliance, both of which border on to Milton Keynes.

In addition we hope the initiative will spread to one of our other neighbouring regions, the Thames Valley Cancer Alliance.

For more information on our Cancer And Beyond workshops please drop us a line on info@mkcpp.org.

Please support MK’s Esther Hutson for London Marathon!

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Let’s hear it for Esther Hutson, daughter of MKCPP member and throat cancer survivor Trevor Hutson and his wife/carer Sally. Esther is running the London Marathon this year to raise money for laryngectomy patients nationwide. Trevor is also a member of Head & Neck Cancer – MK and of Milton Keynes’ new group for head and neck cancer patients, The Swallows.

Trevor explains the background

Please support MK's Esther Hutson for London Marathon!
Trevor and Esther Hutson

“I know this is not really 100% relevant but we have a really great and long standing charity for lary’s called NALC – National Association of Laryngectomy Clubs. They are an organisation that provide information for larys and their carers. They help support Clubs and groups. They provide lots of free important accessories such as emergency wristbands, emergency cards, contacts , dvds, car window stickers etc.

Please go to their website to have a look (as they do ship worldwide) http://www.laryngectomy.org.uk/ and they are always pleased to help us all.

Our daughter Esther, on hearing their desperate plight for funding decided to run the London Marathon on behalf of all us larys who are unable to endure a twenty six mile run! We are hoping it will increase awareness of neck breathers and their plight. [Read more…]