Milton Keynes Cancer Patient Partnership
Wednesday 13th January 2016, 12:30 – 2.30
BICS Training Room, Oak House
Alan Hastings Chair, PPG Whaddon Medical Centre – Observer
Angela Sheldrick Breast re-design Project Manager
Bronwen Webster User rep, Head & Neck
Carol Hewett User rep, Upper GI
Claire Crick User rep, Breast
Dawn Allen User rep, Carer, Paediatric, The Henry Allen Trust
Deb James User rep, Lower GI
Gail Spooner User rep, Breast, Lead LG,FB
Jaff Newton MKCPP Secretary, User rep, Breast
Jean Mattinsley User rep – Healthwatch rep, Carer
Jeannie Righton User rep, Lung
John Fielding Observer, Prostate
Linda Wilson User rep, Breast
Ray McPherson User rep, Carer
Richard Freeman User rep, Upper GI, Haematological
Rose Coppard User rep, Lower GI
Sarah Crane Revd. Team Chaplain
Steph McPherson User rep, Breast & Ovarian
Suzan St Maur MKCPP Chair, User rep, Breast, Bladder, Carer
Toni Fisher Manager, Whaddon Medical Centre – Observer
Chrissie Gevis Senior R&D Administrator
David Buckley User rep, Prostate
Elizabeth Bradley User rep, Breast
Graham Anderson User rep, Prostate
Graham Youngman Asplands PPG, User rep
Jenny Abbot User rep, Breast
Jen Davies Cancer Manager
Kate Iseton Lymphedema Service Willen Hospice
Kim Bowles Macmillan Development Manager
Kim Weston Bereavement Officer
Lorraine Mir User rep, Skin
Sabina Dawson User rep, Carer
Sally Burnie Head of Cancer Services
Sally Levertte Willen Hospice
Sam Timmins Macmillan Cancer Information & Support Manager
Future dates for your diary:
2016 12.30 – 2.30 All being held in the BICS TRAINING ROOM, OAK HOUSE
Tuesday 8th March
May Wed 11th
July Tue 12th
Sept Wed 14th
Nov Tue 8th
Item #1 – Welcome
**Suze welcomed everyone, especially our guests Toni, Alan and John.
These were noted.
These were agreed and signed by the Chair.
There were no matters arising that were not on the agenda.
Item #2 – Guest speaker
**Angela Sheldrick- Breast care specialist ANP for 12 years.
Angela explained her new role on the one year project focusing on the Follow-up Breast Care pathway. This addresses the Cancer Survivorship programme and the Macmillan “Need for Change”
The number of people surviving cancer after treatment and living with cancer is ever increasing so their follow-up management needs to be carefully planned to prevent the system being overwhelmed and to give the patient more choice.
Living With and Beyond cancer is being addressed nationally, but this project will be tailored and piloted for Milton Keynes.
Open Access Follow-up – after active treatment is finished a ‘Summary of care’, will be drawn up based on an Holistic Needs Assessment and shared with both the patient and their GP so everyone is in the loop.
No one-system will fit all, so there will be a range of options, such as,
- contact numbers at the hospital for easy access back into the system, avoiding lengthy GP waits.
- telephone follow-ups initiated by the ANP
- clinic appointments where most appropriate
- wellbeing workshops
- support groups
- LGFB – Look Good Feel better
- relevant information in the MKCPP Resources Directory etc
Lively, lengthy discussion followed.
Suze & Richard agreed to work with Angela and the Whaddon Medical Centre to set up a pilot, supported by Toni, the manager, and Alan, Chair of the PPG.
Suze and Richard agreed to report back on their progress at the March meeting.
Action – Angela, Suze and Richard to report back at March meeting.
Item #3 – MKUHFT – Sally and Jen
Both were unable to attend so there will be update at the March meeting.
**Annual meetings will be held in Jan/March 2016 and the Internal Validations will follow in March/May. The only external Peer Review is for CUP (Cancer of Unknown Primary) in May.
Palliative care 20th Jan 10 -11 Jean
UGI/CUP 21st Jan 2-4 Carol
Gynae 25th Jan 2-4 Jaff
Skin 28th Jan 2.30-4 Lorraine/Clare
Breast 26th Feb 12-1 Linda
Urology ? Feb Suze
Paeds 22nd March 2,30-4 Dawn/Jaff
Lung tba Jeannie/Jaff
Item #4 – Dawn Allen – Henry’s Trust
**Suze asked Dawn to share her news with the group. A small plaster money box cow was passed round that had been supplied from Hobby Craft and will be given to the children to paint and decorate while they are on the ward and then take it home. She will be called Millie to link her to the Patient Journal Millie.
There will be a press release when Millie is being launched.
Dawn said she was still working on the Children’s’ Patient Journal.
Fund raising was about to start for the Isolation suite, referred to by the children as “the cupboard”
**Allan Hastings joined the meeting, he said he had found the room very difficult to locate, highlighting once again the need for extra, clear, signage while major changes are being made to the hospital site.
Item #5 – Working groups
**Patient Journal Feedback Project
Linda said that she had collected 3 returned Journals which she will check and feed back to the Cancer team to action if necessary. The information collected from the new launch is being typed up which she will then and collate and present at a meeting to be arranged in February where it will be discussed and the way forward be planned.
Findings will be reported back at the March meeting.
**Cancer Resources Directory. Suze said that the second edition was printed and ready for distribution. It was suggested that GP surgeries might pay for copies that they require.
**Environment audits. Jaff said she would arrange for audits in the Skin and Gynae Clinics to take place in March.
**Courtyard garden – Jaff said that garden was in need of attention and that she would organise a working party in March. Deb said she may have a contact who would like a gardening project and would look into it.
Action – Jaff to organise for March.
**MKCPP documentation – Ongoing.
**Public Liability Insurance – Ray and Richard will take this forward.
Suze asked Ray to contact the Charity Commission and ask about setting up MKCPP as an independent charity. Suze asked for a show of hands to see if the group is in favour of exploring this route. A “yes” vote was unanimous. Ray agreed to make enquires.
A commercial sponsor was suggested
Sarah suggested advertising for sponsorship
Action – Ray to report back March meeting
**Website – www.mkcpp.org – Suze will continue to monitor and update.
**Information / Literature / Leaflets – Sabina will continue to monitor and update.
Item #6 Support Groups and other updates
**Bosom Pals – The Goodie bags for Breast patients continue to be well received. For more information see website – bosompals-miltonkeynes.btck.co.uk
**Bladder Group – The “Pee-Wees” – Meetings are still on hold for the time being but it is hoped to restart them.
**Prostate Group – MK-PCS – Next meeting 15th February 4pm – 6.30. For more information see website – www.prostatemk.org
**MK Supermoles – Skin Cancer Support group – Next meeting ?
**Willen Hospice – Sally L. said that there had been staff shortages in the community but they were now back to full strength.
**Carers MK – Ongoing
**Chaplaincy service – Sarah said that the new lead chaplain was Philip Winn.
Suze said she hoped he would come to one of our meetings this year.
**LGFB – Sam said that all places were booked up until June, and that two extra sessions would held in February and April to cope with the demand. Gail said that there was a need to recruit more therapists and that she was going to give a presentation to the beauty students and staff at Milton Keynes College in March.
**Dawn said she would contact Gail about the provision of more sessions for young patients.
**Toni asked how the workshops were advertised she said that she chairs the GP practice managers’ meetings and would spread the word to them.
A discussion followed.
**Toni talked briefly about her role as practice manager and said the medical centre provided a cardiology service. She also said that in their demographic area there was a high incidence of cancer which was a chronic problem. Staff were involved with these patients but they seldom heard about the success stories of patients. She said that she would pass on information about our group to the GPs and other practice managers.
**Suze invited John to share his story briefly. He said he filled his time walking and making use of the gym. He also attended the local Prostate Group
The meeting closed at 14.12hrs.
Date of next meeting
Tuesday 8th March
NEW TIME 12.30 – 2.30 All being held in the
BICS TRAINING ROOM, OAK HOUSE